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07 February 2009 @ 09:30 am
My mother passed away this morning at 5:00. I'm going to assume she went peacefully in her sleep. She'd been in a nursing home for the last six months because my father was no longer able to care for her. I hadn't been to see her in the nursing home because I'd been told it was a "depressing" place, and I was afraid she wouldn't know me.

The last time I saw her, she was happy and cheerful, so I'm going to remember her like that.
 
 
18 January 2009 @ 05:24 pm
Hello everyone.

I thought I would introduce myself and explain how I've been affected by this disease.

First off, my friends call me Shmoo(my real name is Debra). I'm 20(21 in 3 days). I'm a junior in college with a major in Sociology and Women's and Gender Studies and a minor in Psychology.

So, about 5 years ago my dad was diagnosed with Early Onset Alzheimer's. He turned 49 in September. Just recently he's gotten to the point where he can no longer bathe himself. It's hard for him to speak, and it comes out in the form of babbles. My mom has spoken of putting him into a nursing home sometime soon, but I'm not sure when that will happen exactly. I feel so guilty being away at school, even though it is only 45 minutes away. Not having a car makes visits more difficult.

My aunt also passed away about 4 years ago from Early Onset Alzheimer's at the age of 42(she was diagnosed when she was 38). My Grandpa and Great Uncle both passed away from Early onset Alzheimer's before I was born.

This is something that has been affecting my family for a long time, and honestly I don't know how my Grandma does it(she's watched her husband and 2 children pass away from it). I'd really like to get myself involved in some type of study specific to Early Onset Alzheimer's. I want to help out others if at all possible.

I also made a youtube video about Early Onset Alzheimer's if you'd like to check it out. I made this on October 14, 2008.


I'm happy to be a part of this community, and I hope more people decide to join and share their stories.

<3 Shmoo
 
 
Current Location: Illinois
Current Mood: indescribable
 
 
17 January 2009 @ 02:49 pm
Hey group!

My name is Lauren, I'm 21 and I'm from Canada.

I DID have a relative at one time who had Alzheimer's Disease (my Grandpa).  However he passed away right after his 89th birthday last April.

Although I don't get to see him anymore, I am still very much affected by this disease because I am a Gerontology student set to graduate this April.  I have a placement class that involves me working 12 h a week at a retirement home nearby.  There is a section of residents there who are very close to my heart, and many of them are affected by this disease.

Anyhoo, I'm very glad to be a part of this community, thanks for letting me join :)
 
 
Current Mood: cheerfulcheerful
 
 
15 January 2009 @ 11:44 pm
I'm rainbow. I'm 40 years old. My mother is 83, and she has Alzheimer's. She went into a care home a few months ago, and I haven't gone to visit her because I'm afraid to.

The last time I saw her, she was quite happy -- in fact, since she started showing symptoms she's actually been rather cheerful. But since then she started behaving more and more oddly, doing things like peeing in the wastebasket, taking her clothes off in public, stealing food and cutlery from other people's tables in the dining room. And my dad couldn't sleep at night because he was afraid she would leave their apartment and get lost. So he had to put her in the care home.

My brother tells me that it's kind of a depressing place, which makes me not want to go there. And there's a good chance my mother won't recognize me. This is the main thing I'm afraid of.

And of course I feel like a rotten daughter for not going to visit her.
 
 
06 January 2009 @ 01:05 pm
Well, I'll introduce myself.  I'm a 20 year old from WV.  I currently am the live in caregiver for my grandparents.  My grandfather has Alzheimer's while my grandmother has various medical problems.  I've been living with them for almost a year.  During that time my grandfather has went from being able to do most daily activities on his own, including mowing the lawn, to needing help with every thing.  I'm not sure how much longer we'll be able to keep him in his own home instead of a nursing home, but I'm in this for the long haul.
When I have some free time, I enjoy reading vampire novels, writing fanfiction,  playing video games, listening to music, and chatting with my friends.  I'll be going back to college either in a couple weeks or this summer (I'm waiting on the college to let me know if I'm starting next week) to major in Accounting.
 
 
 
03 January 2009 @ 02:15 pm
Sorry to post again, I just thought I'd say that I think it would be great if all the new members would make a post to introduce themselves. :)
 
 
30 December 2008 @ 06:59 pm
This is the community's first post!  I'd just like to kick everything off by introducing myself.

My name is Holly and I am 17 years old.  My dad was diagnosed with Alzheimer's disease when I was 14 and it was very hard for me to deal and cope with.  I never liked talking to anyone about it and was in denial about it for a long time.  Looking back, I wish I could have taken to an online community like this to open up and talk about my dad and what I was feeling, so I guess thats why I started this. 

Don't feel embarrassed or shy to post here, we are all very nice and offer support and comfort.  This is also a great place to ask questions on the disease because it is full of people who are going through the same thing as you are.  Here, we can all learn from each other and build each other up.  All I ask is that you keep your posting on topic.  For example, please don't make a post asking "Where is a good place to buy under-priced jeans?" It will most likely be deleted and will just annoy everyone.

You may feel free to post photos, but I ask that if they are quite large, or you have more than one, to please post them under a cut.  If you need help with the LJ cut, see this community's user information, there is link there.

Well, I leave you at this ladies and gentlemen.  POSTING IS NOW OPEN.

Take care,
Holly, your alz_support Maintainer.